Day 94 – 4/12/24. Balding eyelashes and being the ‘meditation girl’.

Finally started my radiotherapy which weirdly feels SO GOOD. Just to be on the road to better health is gorgeous. My first few treatments made me super anxious but I feel like I’m over that now. It’s genuinely not that bad, so it doesn’t make me nervous anymore. I’m getting used to the mask that I have to wear, even though I feel like it gets tighter by the day! I’m not in it for long so it’s manageable. I’ve sorted out buying an adapter so that I can listen to my own music too which is making a huge difference. So I just meditate the whole way through. It’s hard to properly relax in there, but it gives me something to focus on. Now that I’ve been there a few times, they just know me now. So I walk in and she says ‘pass me your phone Jen and I’ll get your meditation music on’ 😂 they’re so sweet honestly I love them. I’m definitely ‘the meditation girl’, but I’m down with that. Also the Macclesfield Christie is gorgeous. So much quieter and more chilled than Manchester one. So grateful. Someone rung the bell yesterday to signify they’re finished with their treatment and everyone started clapping and cheering. It was BEAUTIFUL to celebrate their achievement – I could have cried and I can’t wait for my moment too on the 8th of Jan when I finish my last radio treatment. I always thought the bell was for when you were completely cured. But turns out it’s for the end of treatment. To show that you endured it and got through it and what an achievement that is! 

Symptoms wise I’m absolutely bloody fine too! A tiny headache, some blurred vision for about half an hour after the treatment and some ‘sunburn’ on my head. But all super manageable. The only thing pissing me off is that I think my eyelashes are starting to fall out. Either that or I’ve been rubbing my eyes too much. But there’s definitely a bald patch in my eyelashes on both eyes. So that’s fun. I think I’d rather lose the hair on my head than my eyelashes for some reason. At least false eyelashes exist – I might have to learn to put them on! I’m not exactly a girly girl – never have been. But I may have to learn how to actually do my makeup and eyelashes properly if I’m going to lose my hair and lashes. So far the hair on my head is holding up fine. Luckily I have thick hair so radiotherapy will have a right task thinning that!!

Other than radio I’ve been trying to keep myself busy as much as possible. I hate having a day where I have no plans. I know I should be resting when I have these days but I honestly just can’t. When I’m busy – I’m distracted and can stay positive. When I’m laid at home with my thoughts – that becomes so much harder. Everyone says to listen to your body and slow down etc, but I think listening to your body includes listening to your mind too. And everyone recovers and gets through treatment in different ways. This is my way and what makes me feel good – so it’s what I’m going to do 😂❤️ (see, stubborn Jen didn’t go anywhere for long). 

Special shoutout to everyone who has taken or offered to take me to my daily appointments. You all mean the WORLD to me. I could totally go alone but mum has made me promise that I won’t 😂. So I MUST be chauffeured apparently 🤷🏻‍♀️. To be fair it’s lovely to see my friends and family this much when someone is picking me up and taking me everyday! 

LOVE YOU ALL. 

Love Jen and Nev 🧠👁️⚡️

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Kicking a brain tumours butt at 30 🧠

My journey from diagnosis to remission – each day at a time.